What we do

Where sickle cell meets real life.

Sickle cell reaches far beyond the clinic. It can shape school, emergency care, sports and recreation, family routines, and the transitions in between.

We concentrate our lived and professional experience where it can make a distinct difference for children and families.

01Learn

School Success & Life Transitions

We help connect health needs with the plans, communication, and support that keep students engaged in learning and prepared for what comes next.

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A Black educator and students learning together in a classroom

IEP and Section 504 advocacy and planning
Academic continuity during absences and hospitalization
School-health coordination and reentry
Educator training and resources
Career and postsecondary exploration

02Care

Emergency & Acute Care

Our education and quality improvement work focuses on the moments when evidence, urgency, communication, and dignity must come together.

Explore emergency and acute care

Emergency medical professionals standing beside an ambulance

EMS and emergency-department education
Patient and family experiences informing better care
Evidence-based acute-care practice
Support during hospitalization
Hospital-to-school transitions

03Thrive

Joy, Movement & Community

Sports and recreation are part of a full childhood. We are developing ways to help children with sickle cell participate safely and confidently while making space for wellness, connection, and voice.

Explore family support

Black children enjoying a group movement activity in a park

Safe, inclusive sports and recreation
Wellness and movement experiences
Patient and caregiver support
Youth voice and storytelling
Family and community events

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